SOCIAL EMPOWERMENT TO DEAL WITH NEGATIVE STIGMA AND DISCRIMINATIVE TREATMENT AGAINST PEOPLE WITH HIV/AIDS

Argyo Demartoto, Siti Zunariyah, Tyas Nur Haryani

Abstract

The existence of people with HIV/AIDS or PWHAs in daily life results in a variety of social problems to themselves, family, friend, neighbor, surrounding environment, and wide society. This qualitative research with phenomenological approach aimed to analyze social empowerment to deal with negative stigma and discriminative treatment against PWHA in Surakarta, Indonesia. Primary data was collected from PWHAs, Solo Plus Peer Support Group, health workers, Surakarta AIDS Commission, and NGOs caring about AIDS. The result of observation, in-depth interview, and some related documents were analyzed using community empowerment theory and labeling. The result of research showed that social empowerment with intensive information education and communication on HIV/AIDS can change people’s interpretation on PWHAs. Government policy supporting PWHAs’ need, improved participation of PWHAs in such activities as HIV/AIDS overcoming in family, community, work environment, and society, and sustainable facilitation can solve social medical problem of PWHAs. The presence of improved capacity and social-cultural structure of society conducive to HIV/AIDS is expected to overcome negative labeling and discrimination against PWHA.    

 

Keywords: PWHA empowerment, social economic and medical support for PWHAs

 

Abstrak

Keberadaan orang dengan HIV/AIDS atau ODHA dalam kehidupan sehari-hari menimbulkan aneka masalah sosial baik dengan dirinya sendiri, keluarga, teman, tetangga, lingkungan sekitar, dan masyarakat luas. Penelitian kualitatif dengan pendekatan fenomenologis ini bertujuan menganalisis pemberdayaan sosial untuk mengatasi stigma negatif dan perlakuan diskriminatif terhadap ODHA di Surakarta Indonesia. Data primer dikumpulkan dari ODHA, Kelompok Dukungan Sebaya Solo Plus, pelayan kesehatan, Komisi Penanggulangan AIDS Surakarta dan NGO peduli AIDS. Hasil observasi, in-depth interview, dan beberapa dokumen terkait dianalisis dengan teori pemberdayaan masyarakat dan labelling. Hasil penelitian menunjukkan bahwa pemberdayaan sosial dengan Komunikasi Informasi Edukasi yang intensif tentang HIV/AIDS dapat mengubah interpretasi masyarakat terhadap ODHA. Kebijakan pemerintah yang mendukung kebutuhan ODHA, meningkatnya partisipasi ODHA dalam berbagai kegiatan termasuk penanggulangan HIV/AIDS baik di keluarga, komunitas, lingkungan kerja dan masyarakat, serta pendampingan yang berkelanjutan dapat mengatasi masalah sosial medis ODHA. Dengan adanya peningkatan kapasitas dan struktur sosial budaya masyarakat yang kondusif terhadap HIV/AIDS diharapkan dapat mengatasi label negatif dan ketidakadilan terhadap ODHA.

 

Kata kunci : pemberdayaan ODHA, dukungan sosial ekonomi dan medis bagi ODHA

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References

Arneson, H., & Ekberg, K .2005. Evaluation of empowerment processes in a workplace health promotion intervention based on learning in Sweden. Health Promotion International, 20(4): 351-359.

Blanchard, A. K., Mohan, H. L., Shahmanesh, M., Prakash, R., Isac, S., Ramesh, B. M., Bhattacharjee, P, Gurnani, V, Moses, S & Blanchard, J. F .2013. Community mobilization, empowerment and HIV prevention among female sex workers in south India. BMC Public Health, 13(1) : 234.

Boneh, G., & Jaganath, D .2011. Performance as a component of HIV/AIDS education: Process and Collaboration for Empowerment and Discussion. American Journal of Public Health, 101(3): 455-464.

Brashers, D. E., Neidig, J. L., & Goldsmith, D. J. 2004. Social support and the management of uncertainty for people living with HIV or AIDS. Health Communication, 16(3): 305-331.

Campbell C, Skovdal M, Madanhire C, Mugurungi O, Gregson S & Nyamukapa C,. 2011. “ We, the AIDS people. . .”: How Antiretroviral Therapy Enables Zimbabweans Living With HIV/AIDS to Cope With Stigma.Am J Public Health.101(6): 1004–1010.

Chambers LA, Rueda S, Baker DN, Wilson MG, Deutsch R, Raeifar E, & Rourke SB, The Stigma Review Team. 2015. Stigma, HIV and health: a qualitative synthesis. BMC Public Health 15(848): 1-17

Christenson, J.A., Fendley, K., & Robbinson, J.W. 1989, Community development. In: Christenson, J.A., Robinson, J.W., editors. Community Development in Perspective. Ames, IA: Lowa State University Press

Colaizzi, P.F. 1978. Psychological Research as the Phenomenologist Views It. In: Valle, R.S. and Mark, K., Eds., Existential Phenomenological Alternatives for Psychology, Oxford University Press, New York, 48-71.

DelCasino, V. 2001. Enabling geographies? Non-governmental organizations and the empowerment of people living with HIV and AIDS. Disability Studies Quarterly, 21(4).

Dodds, C; Hickson, F; Chinouya, M; Chwaula, J; & Weatherburn, P. 2008.The Knowledge, The Will and The Power: A Plan of Action to Meet the HIV Prevention Needs of Africans in England. Technical Report.London: Sigma Research.

Gray, S. W., & Zide, M. R. 2012. Brooks/Cole Empowerment Series: Psychopathology: A Competency-Based Assessment Model for Social Workers. Cengage Learning.

Gutierrez, L. M. 1995. Understanding the empowerment process: Does consciousness make a difference?. Social Work Research, 19(4) : 229-237.

Jirapaet, V. 2000. Effects of an empowerment program on coping, quality of life, and the maternal role adaptation of Thai HIV-infected mothers. Journal of the Association of Nurses in AIDS Care, 11(4) : 34-45.

Kim,J, Pronyk,P, Barnett,T,& Watts, C .2008. Exploring the role of economic empowerment in HIV prevention. AIDS. 22 : pS57-S71.

Kirst-Ashman, K. 2007. Human behavior, communities, organizations, and groups in the macro social environment: An empowerment approach. Cengage Learning.

Kirst-Ashman, K. K., & Hull Jr, G. H. 2014. Brooks/Cole empowerment series: Generalist practice with organizations and communities. Cengage Learning.

Lather, P.A.2018. Troubling The Angels Women Living With HIV/AIDS. New York: Routledge.

Li, L,Ji, G, Liang, LJ,Ding, Y,Tian, J, & Xiao, Y. 2011. A multilevel intervention for HIV-affected families in China: Together for Empowerment Activities (TEA). Social Science & Medicine. 73 (8) : 1214-1221.

Macaulay, S, & Cook, S.1996.Summary: Perfect Empowerment.Arrow Books Ltd

Macaulay, A., Commanda, L., Freeman, W., Gibson, N., McCabe, M., Robbins, C.,& Twohig, P.L. 1999. Participatory research maximises community and lay involvement. British Medical Journal, 319 : 774–778.

Marin P, Simoni J M & Silverstein L B. 2007. Peer Support to Promote Medication Adherence Among People Living with HIV/AIDS The Benefits to Peers. Journal Social Work in Health Care. 45 (1) : 67-80

Miles M B, Huberman A M, & Saldana J. 2014 . Qualitative data analysis: a methods sourcebook. California : Sage Publication Inc.

Miller, A. B., & Keys, C. B. 1996. Awareness, action, and collaboration: How the self-advocacy movement is empowering for persons with developmental disabilities. Mental Retardation, 34(5) : 312.

Mo, P. K. H, & Coulson, N. S.2010. Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of ‘lurkers’ and ‘posters’. Computers in Human Behavior. 26 (5) : 1183-1193

Mo, P. K. H, & Coulson, N. S . 2012. Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Journal Psychology & Health. 27 (4): 445-459.

Moremen, R.D. 2010. One Starfish at a Time: Using Fundamentals in Sociology to Rethink Impressions about People Living with HIV/AIDS. Teaching Sociology 38(2) 144–155.

Morrow, R., Rodriguez, A., & King, N. 2015. Colaizzi’s descriptive phenomenological method. The Psychologist, 28(8) : 643-644.

Perkins, D. D., & Zimmerman, M. A. 1995. Empowerment theory, research, and application. American Journal of Community Psychology, 23(5) : 569-579.

Pinto R M, McKay M M, Wilson M, Phillips D, Baptiste D, Bell C C, Madison-Boyd S, & Paikoff, R L. 2007. Correlates of participation in a family-based HIV prevention program: exploring African-American Women’s motivations and understanding of the program. Journal of Human Behavior in the Social Environment. 15(2-3): 271–289.

Roy, C. M. & Cain,R. 2001. The involvement of people living with HIV/AIDS in community-based organizations: Contributions and constraints. Journal AIDS Care Psychological and Socio-medical Aspects of AIDS/HIV. 13 (4) :421-432.

Shaluhiyah Z, Musthofa SB, & Widjanarko B. 2015. Public Stigma to People Living with HIV/AIDS. Jurnal Kesehatan Masyarakat Nasional. 9(4) : 333-339.

Spiegelberg, H. 1994. The Pure Phenomenology of Edmund Husserl (1859–1938). In The Phenomenological Movement (69-165). Dordrecht: Springer.

Teasdale, CA & Besser, MJ. 2008. Enhancing PMTCT programmes through psychosocial support and empowerment of women: the mothers2mothers model of care. Southern African Journal of HIV Medicine. 9 (1): 60-64

UNAIDS. 2014. Reduction of HIV-Related Stigma and Discrimination. Geneva, Switzerland: UNAIDS.

Van Rompay, KKA , Madhivanan, P,Rafiq, M, Krupp, K, Chakrapani, V, &Selvam, D. 2008. Empowering the people: Development of an HIV peer education model for low literacy rural communities in India. Human Resources for Health . 6 (6) : 1-11.

White TA. 1989. Empowering yourself, empowering your patients. In: Course syllabus: new approaches to patient care in diabetes. Ann Arbor. University of Michigan.

Yi S, Chhoun P, Suong S, Thin K, Brody C, & Tuot S. 2015. AIDS-Related Stigma and Mental Disorders aamong People Living with HIV: A Cross-Sectional Study in Cambodia. LoSE ONE 10(3): 1-16

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